The Deaf People with Dementia Research Project is part of the
School of Nursing, Midwifery and Social Work
Deaf People with Dementia Research Project

Publications/Dissemination

Dissemination activities are as follows:

Alys Young, Heather Waterman and Emma Ferguson-Coleman wrote a research brief for Social Care Institute of Excellence (SCIE) about dementia and sensory loss. The summary can be found here: SCIE Research Review

The direct link to the BSL version can be found here: SCIE review in BSL

Our report submitted to Manchester Institute for Collaborative Research on Ageing (MICRA) in September 2014 can be read here: MICRA report

The BSL version for the report can be watched here:

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BSL version for the MICRA report (December 2014)

 

Lay Summary of the Deaf with Dementia project (as submitted to the Alzheimer's Society in December 2013)

You can view the English version of this report which is available on the left menu bar at Deaf with Dementia Lay Summary.

Journal article publications

Young, A., Ferguson-Coleman, E. & Keady. J. (2014). Understanding the personhood of Deaf people with dementia: Methodological Issues. Journal of Aging Studies  Vol 31:62-69. DOI: 10.1016/j.jaging.2014.08.006. Open Access: http://www.sciencedirect.com/science/article/pii/S0890406514000486

Ferguson-Coleman, E., Keady, J., & Young A. (2014).Dementia and the Deaf Community: Knowledge and Service Access. Aging and Mental Health, DOI: 10.1080/13607863.2014.880405. Published online 05/02/14.

Atkinson J., Denmark, T., Woll, B., Ferguson-Coleman, E., Rogers, K., Young, A., Keady, J., Burns, A., Geall, R. and Marshall, J. (2011). Deaf with Dementia: towards better recognition and services. Journal of Dementia Care, 19(3): 38-39. You can read this article here

Atkinson J., Denmark, T., Woll, B., Ferguson-Coleman, E., Rogers, K., Young, A., Keady, J., Burns, A., Geall, R. and Marshall, J. (2012). Creating services for Deaf people with dementia  Living with dementia magazine, Alzheimer’s Society May 2012, pg. 20-21.

Denmark, T.; Atkinson, J.; Woll, B.; Marshall, J. (2012) Identifying dementia in deaf sign language users ALZHEIMERS AND DEMENTIA VOL 8; NUMBER 4; SUPP (2012) pp.P556-P556 

Letter to the Lancet

Atkinson, J & Woll, B. (2012) The Health of Deaf People in The Lancet, Vol. 379, Issue 9833, Page 2239, 16 June 2012
http://www.thelancet.com/journals/lancet/article/PIIS0140-6736(12)60974-X/fulltext
 

Peer reviewed published abstracts

Denmark, T.; Atkinson, J.; Woll, B.; Marshall, J. (2012) Identifying dementia in deaf sign language users. Alzheimer’s and Dementia 8 (4), Supp. (2012) pp. P556-P556.

 

Posters given at research conferences

Denmark, T. & Ferguson-Coleman, E. (2010) "Deaf With Dementia Project". Poster presentation delivered at Alzheimer's Society Researchers Conference, Warwick, UK, 16-18 Sept 2010

Keady, J. (2010) "Deaf With Dementia Project". Poster presentation delivered at the Knowledge Network in Rural and Remote Dementia Care Summit at the University of Saskatchewan, Saskatchewan, Saskatoon, Canada, 28-29th October 2010, Canada

 

 

John with Debra Morgan, Associate Professor, Chair, Rural Health Delivery,Canadian Centre for Health and Safety in Agriculture, University of Saskatchewan

Ferguson-Coleman, E., Atkinson, J., Denmark, T., Keady, J., Woll, B. & Young, A. (2011) Overcoming obstacles to the early identification of dementia in the signing Deaf community in the UK. World Federation for the Deaf, July 2011.

Denmark, T. & Ferguson-Coleman, E. (2011) "Deaf With Dementia Project". Poster presentation delivered at Alzheimer's Society Researchers Conference, Birmingham, September 2011.

Denmark, T., Atkinson J., Woll B., Marshall, J., Young, A., Ferguson-Coleman, E., Rogers, K., Geall, R., Keady, J. & Burns, A. (2012) Identifying cognitive disorder and dementia in users of sign languages - moving away from spoken language tests. Poster Presentation delivered at the Experimental Psychology Society's workshop, UCL, London, January 2012.

Ferguson-Coleman, E., Atkinson, J., Denmark, T., Keady, J., Woll, B. & Young, A. Overcoming obstacles to the early identification of dementia in the signing Deaf community in the UK. Alzheimer’s Disease International Congress, March 2012.

Atkinson, J. & Ferguson-Coleman, E. (2013) The Deaf with Dementia Project. Presentation given at UKCoD Conference on Ageing and Deafness: Implications for Health and Social Care London 16th October 2013.

Atkinson, J., Callaghan, P., Denmark, T., Ferguson-Coleman, E., Keady, J., Marshall, J., Sheldon, J., Woll, B., & Young, A. (2013) Deaf with Dementia Symposium: From the margins to the mainstream. UK Dementia Congress, Nottingham, 7th November 2013.

Research Presentations

Ferguson-Coleman, E. (2010) "Overcoming obstacles to the early identification of dementia in the signing Deaf community". Presentation delivered at the European Society for Mental Health and Deafness Congress, Cambridge, UK, 2-5 November 2010

Atkinson, J., Denmark, T. (2010) “Cognitive Norms in Healthy Aging Deaf people and the development of a dementia screening tool for Deaf BSL users.”Presentation delivered at the European Society for Mental Health and Deafness Congress, Cambridge, UK, 2-5 November 2010

Ferguson-Coleman, E. (2011) Overcoming obstacles to the early identification of dementia in the signing Deaf community in the UK Greater Manchester West Research and Development Dementia Seminar, Manchester, May 2011

Atkinson, J. (2011) To overcome barriers to diagnosis of cognitive impairment in deaf users of British sign language (BSL) through the development of a linguistically and culturally appropriate cognitive screening test (BSL-CS) similar in scope to tests commonly used with normally hearing populations (eg. MMSE, ACE). UCL Neurosciences Symposium, July 2011

Atkinson, J, Denmark, T, Marshall, J and Woll B, (2012) Identifying cognitive disorders and dementia in users of sign language: Moving away from spoken language tests, Poster presentation, Experimental Psychology Society workshop, London, 7th-8th January 2012

Atkinson, J and Denmark, T, (2012), Identifying dementia in deaf users of British Sign Language, Invited lecture, Dementia Research Centre, UCL Institute of Neurology, 26th January 2012

Atkinson J and Denmark, T, (2012), BSL cognitive tests and cognitive disorders clinic for deaf people, Invited lecture, Applied Psychology Special Interest Group in Deafness, London, 27th January 2012

Marshall, J. & Ferguson-Coleman, E. (2012) Communication Strategies with Deaf People with Dementia. Presentation delivered at Primary Care 2012 Conference, NEC, Birmingham 24th May 2012

Ferguson-Coleman, E. (2012) Deaf people with dementia and their carers: communicating experiences, attitudes and service provision. Presentation delivered at the Alzheimer's Society Researcher's Conference, Metropole Hotel, Leeds, 4th October 2012.

Ferguson-Coleman, E. (2012) Deaf people with dementia and their carers: communicating experiences, attitudes and service provision. Presentation to Social Work students, Adult Elective, University of Manchester, 4th December 2012.

Ferguson-Coleman, E. (2013) Overcoming obstacles to the early identification of dementia in the signing Deaf community. Presentation delivered at Newcastle Healthy Deaf Minds, Newcastle-upon-Tyne 31st Jan 2013

Ferguson-Coleman, E. (2013) Overcoming Obstacles to the Early Identification of Dementia in the signing Deaf Community. Easthill Home for Deaf People Staff Team, Ryde, Isle of Wight 4th February 2013

Woll, B., Atkinson, J. & Ferguson-Coleman, E. (2013) The Deaf with Dementia Project. Keynote speakers at UKCOD Ageing and Deafness Seminar, London 18th April 2013.

Ferguson-Coleman, E. (2013) Deaf people with dementia and their carers: communicating experiences, attitudes and service provision. Presentation to Social Work students, Adult Elective, University of Manchester, 19th November 2013.

Briefings, on behalf of the Deaf with Dementia research project group

Young, A. (2010). Deaf people and dementia – some briefing notes to assist the development of the equalities action plan with respect to the National Dementia Strategy. Dec 2010.

Young, A. (2011). Deaf people and dementia – briefing notes to Paul Burstow, Minister of State for Care Services, at his request, October 2011.

Publications for lay audiences

Information has been made available on the websites of:

British Society for Mental Health and Deafness website September 2010

Royal Association for Deaf people website 30 Dec 2010

Presentations to lay audiences

Denmark, T. Geall, R., Keady, J. & Rogers, K. (2010) "Addressing Dementia". Presentation delivered at Healthy Deaf Minds, London, UK, April 2010.

Atkinson, J.R., Woll, B. & Young, A. (2010)
'Deaf with Dementia project'. Appearances on BBC2 See Hear - Series 30 - Episode 23 Nationwide transmission 24th November 2010 (Video reproduced with permission from the BBC)

 

 
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Ferguson-Coleman, E. (2011) "Overcoming obstacles to the early identification of dementia in the signing Deaf community". Presentation delivered at the Chaplains with Deaf People Annual Conference, Swanick, Derbyshire, June 2011.

Ferguson-Coleman, E. (2011) “Deaf people living with dementia” Social Research with Deaf People (SORD)’s Deaf Community Day, Manchester Deaf Centre, March 2011

Ferguson-Coleman, E. (2011) "Overcoming obstacles to the early identification of dementia in the signing Deaf community". Presentation delivered at Deafness Resource Centre, St Helens, Merseyside. July 2011

Ferguson-Coleman, E. (2011) "Overcoming obstacles to the early identification of dementia in the signing Deaf community". Presentation delivered at the Midlands Regional Association for Deaf people, Walsall, November 2011.

Ferguson-Coleman, E. (2012) "Overcoming obstacles to the early identification of dementia in the signing Deaf community". Presentation delivered at Wolverhampton Deaf Club, 1st February 2012

Ferguson-Coleman, E. (2012) "Overcoming obstacles to the early identification of dementia in the signing Deaf community". Presentation delivered at DeafVibe, 11th February 2012

Ferguson-Coleman, E. (2012) "Overcoming obstacles to the early identification of dementia in the signing Deaf community". Presentation delivered at Manchester Deaf Centre, 2nd July 2012

Ferguson-Coleman, E. (2012) "Overcoming obstacles to the early identification of dementia in the signing Deaf community". Presentation delivered at East Lancashire Deaf Society, 25th July 2012

'Diagnosing dementia in the Deaf community' Appearances on See Hear - Series 32 - Episode 18 Nationwide transmission 17th October 2012

Ferguson-Coleman, E. (2013) "Overcoming obstacles to the early identification of dementia in the signing Deaf community". Presentation delivered with Genie Networks, Manchester 23rd January 2013

Ferguson-Coleman, E. (2013) "Overcoming obstacles to the early identification of dementia in the signing Deaf community". Presentation delivered at Newcastle Deaf OAP Group, St Johns, Newcastle-upon-Tyne 30th Jan 2013

Ferguson-Coleman, E. (2013) "Overcoming obstacles to the early identification of dementia in the signing Deaf community". Presentation delivered at Cambridgeshire Deaf Association, Cambridge 26th February 2013

Ferguson-Coleman, E. (2013) "Overcoming obstacles to the early identification of dementia in the signing Deaf community". Presentation delivered at Deaf and Hard of Hearing Coffee Morning Over 55s, Oldham, 5th April 2013

Ferguson-Coleman, E. (2013) "Overcoming obstacles to the early identification of dementia in the signing Deaf community". Presentation delivered at North West Deaf Women’s Group, Oldham, 15th June 2013

Ferguson-Coleman, E. (2013) “Deaf people with dementia and their carers: communicating experiences, attitudes and service provision” Presentation delivered at Taunton and Bridgwater Deaf Club, Taunton 22nd October 2013

 

 

 

Presentations to professional audiences

Young, A. (2011). How is research addressing the strengths and needs of the changing Deaf community? Chief Officers Group Annual Meeting, Penrith, March 2011.

Ferguson-Coleman, E. (2012) Overcoming Obstacles to the Early Identification of Dementia in the signing Deaf Community. Occupational Therapists Special Interest Group Meeting, John Denmark Unit, Manchester. 21st May 2012

Young, A. & Ferguson-Coleman, E (2012) Deaf people with dementia and their carers: communicating experiences, attitudes and service provision. Presentation delivered at the MICRA-DART Joint Symposium in collaboration with CABS [CENTRE for AGEING AND BIOGRAPHICAL STUDIES, Open University] and Supported by Valuing Older People, Manchester City Council: Rethinking ‘dementia’: Multi-disciplinary approaches to understanding dementia in everyday life. 28th May 2012