Living with Systemic Sclerosis (SSc) and Raynaud's
If you, or someone you know, is affected by scleroderma or primary Raynaud’s phenomenon, there are a number of organisations that produce excellent information leaflets and who run patient support groups:
- Scleroderma & Raynaud's UK
- Arthritis Research UK
- Federation of European Scleroderma Associations (FESCA)
The Salford Royal clinical service also offers patient education days with talks from doctors, specialist nurses and allied health professionals and the opportunity to meet other patients and their families.
Although these information days are intended only for Salford patients, the patient support organisations listed above often host similar events.