Effective Home Support in Dementia Care: Components, Impacts and Costs of Tertiary Prevention

 

This programme aims to discern different models of home support, systematise them, survey their current operation in England and evaluate their cost-effectiveness in providing care for people with dementia and their carers, from the NHS in partnership with local authority social care and voluntary organisations.  This will be done through nine distinct, but interlinked, projects. It has five main objectives:

  • To develop evidenced-based guidance on home support models for dementia care with direct applicability by NHS Trusts and partner organisations, to derive benefits in terms of more efficient and effective care and enhance the patient/carer experience.
  • To test for preliminary evidence of a model in early stage dementia through a pragmatic implementation trial of memory aids.
  • To determine the effectiveness and cost-effectiveness of different models of support in enhancing well-being, reducing the number of hospital admissions and delaying care home admission.
  • To determine the effectiveness of supported implementation of evidence-based guidance through a toolkit developed in one Trust area and partner organisations and roll out with commissioners, managers and practitioners.
  • To conduct an integrated quantitative and qualitative evaluation from the viewpoint of carers and people with dementia concerning the costs of home support and their preferences for different attributes of care.

The Programme grant is funded by the National Institute for Health Research (NIHR) and the PI and Co-I's based at PSSRU Manchester are: Dr Paul Clarkson (Current Principal Investigator), Professor Catherine Robinson (Current Principal Investigator), Professor Brenda Roe (Honorary Fellow), and Dr David Jolley (Honorary Reader in Old Age Psychiatry).

Professor David Challis was the Original Chief Investigator for the Programme until October 2018.  Dr Jane Hughes was Co-Investigator then Principal Investigator for the Programme until March 2019.

Partners on the Programme are: Reagan Blyth (Pennine Care NHS Foundation Trust); Professor Linda Davies (University of Manchester); Professor Ian Russell (Swansea Trials Unit, Swansea University); Jean Tottie (Together in Dementia Everyday); Professor Fiona Poland (University of East Anglia); Professor Martin Orrell (Nottingham University); Narinder Kapur (Honorary UCL); and members of the Small Reference and Lay Advisory, Patient Public and Carer Involvement Groups.

The study began in September 2013 and links to key outputs, including the final report for the NIHR, will appear in due course.

Project Outline:

Effective Home Support in Dementia Care: Components, Impacts and Costs of Tertiary Prevention

Publications:

Giebel, C., Roe, B., Hodgson, A., Britt, D., Clarkson, P. Members of the HoST-D (Home Support in Dementia) Programme Management Group and Patient Public and Carer Involvement Groups (2017) Effective public involvement in the HoST-D Programme for dementia home care support: From proposal and design to methods of data collection. Dementia, DOI: 10.1177/1471301216687698.