The Personal Social Services Research Unit (PSSRU): publications

2017 and 2018

  • Abendstern, M., Jasper, R., Hughes, J., Loynes, N., Sutcliffe, C., & Challis D. (2018). Care coordination for older people in England: Does context shape approach? Journal of Social Work, 1-23. DOI: 10.1177/1468017318762654. Publication link: c49bd472-3f28-4fe2-97a1-74143f6d7872
  • Ahmed, S., Hughes, J., Davies, S., Stewart, K., Orrel, M., Clarkson, P., & Challis, D. (2018). Specialist services in early diagnosis and support for older people with dementia in England: Staff roles and service mix. International Journal of Geriatric Psychiatry, 33(9). DOI: 10.1002/gps.4925. Publication link: 40a70d0e-48bb-420f-b933-de8062b59356
  • Chester, H., Clarkson, P., Davies, L., Hughes, J., Islam, M,S., Kapur, N., Orrell, M., Peconi, J., Pitts, R., Poland, F., Russel, I., Challis, D., & Members of the HoSt-D (Home Support in Dementia) Programme Management Group. (2018). Cognitive aids for people with early stage dementia versus treatment as usual (Dementia Early Stage Cognitive Aids New Trial [DESCANT]): study protocol for a randomised controlled trial. Trials, 19, 546. DOI: 10.1186/s13063-018-2933-8. Publication link: e7592c47-b175-4a41-a879-e5a01c97198f
  • Clarkson, P., Davies, S., Hughes, J., Xie, C., Stewart, K., Clifford, P., & Challis, D. (2018). Priorities for long-term care resource allocation in England: Actual allocation versus the views of Directors of Service and older citizens. Jounal of Long Term Care, 13-23. DOI: 10.21953/lse.szdir7uvfpzg. Publication link: d807d73f-a6cc-4249-9b59-abaaa8173c79
  • Clarkson, P., Hays, R., Tucker, S., Paddock, K., & Challis, D. (2018). Healthcare support to older residents of care homes: a systematic review of specialist services. Quality in Ageing and Older Adults, 19 (1), 54-84. DOI: 10.1108/QAOA-08-2017-0029. Publication link: 92c096c0-e08f-421e-b10a-4ad8a2f257eb
  • Costa, N., Wübker, A., De Mauléon, A., Zwakhalen, S ., Challis, D., Leino-Kilpi, H., ...... & Soto, M. (2018). Costs of care of agitation associated to dementia in 8 European countries: results from the RightTimePlaceCare study. Journal of the American Medical Directors Association, 19 (1), 95.e1–95.e10.   DOI:10.1016/j.jamda.2017.10.013. Publication link: 968b0a3e-5bdd-4c9e-a5a0-69bfffe2a0ae
  • Forsyth, K., Archer-Power, L., Senior, J., Meacock, R, Webb., ......Challis, D., .....& Shaw, J. (2018). The effectiveness of the Older prisoner Health and Social Care Assessment and Plan (OHSCAP): a randomised controlled trial. Health Services and Delivery Research, 5 (31). DOI: 10.3310/hsdr05310 Publication link: 99f2193b-a1a6-4aa5-b219-0eec0e6b7675
  • Giebel, C., Flanagan, E., & Sutcliffe, C. (2018). Predictors of finance management in dementia: managing bills and taxes matters. International Psychogeriatrics, 1-10. DOI: 10.1017/S1041610218000820. Publication link: e2bb7f4f-9fa4-4574-8af8-dc542bf5005e
  • Harding, A., Morbey, H., Ahmed, F., Opedeeck, C., Wang, Y., Williamson, P., Swarbrick, C., Leroi, I., Challis, D., ..... & Reeves, D. (2018). Developing a core outcome set for people living with dementia at home in their neighbourhoods and communities: study protocol for use in the evaluation of non-pharmacological community-based health and social care interventions. Trials 19 (1), 247. DOI: 10.1186/s13063-018-2584-9. Publication link: 7bbe881a-b5e3-4822-8991-3fd2121f36c5
  • Hughes, J., Davies, S., Chester, H., Clarkson, P., Stewart, K., & Challis, D. (2018). Learning disability services: user views on transition planning. Tizard Learning Disability Review, 23 (3), 150-158. DOI: 10.1108/TLDR-07-2017-0032. Publication link: f1340aba-3821-4990-b6af-8d7ee98f0117.
  • Jasper, R., Chester, H., Hughes, J., Abendstern, M., Loynes, N., Sutcliffe, C., Davies, L., & Challis, D. (2018). Practitioners preferences of care coordination for older people: a discrete choice experiment. Journal of Gerontological Social Work, 60 (2), 151-170. DOI: 10.1080/01634372.2017.1417342. Publication link: adc9c737-e32f-4d92-a196-0bea0e8c3849
  • Romhild, J., Fleischer, S., Meyer, G., Stephan, A., Zwakhalen, S., ..... Sutcliffe, C., Rahm-Hallberg, I., Berg, A., & on behalf of the RightTimePlaceCareConsortium. (2018). Inter-rater agreement of the Quality of Life-Alzheimer's Disease (QoL-AD) self-rating and proxy rating scale: secondary analysis of RightTimePlaceCare data. Health and Quality of Life Outcomes, 16(1), 131. DOI: 10.1186/s12955-018-0959-y. Publication link: 910375e7-b0e6-4b8b-bb1d-97003e51d014.
  • Tucker, S., Buck, S., Roe, B., Hughes, J., & Challis, D. (2018). Hospital admissions and place of death of residents of care homes receiving specialist healthcare services: protocol for a systematic review. Journal of Advanced Nursing. DOI: 10.1111/jan.13866. Publication link: 632b5083-5266-4b63-8239-4d60470c82f0
  • Tucker, S., Hughes, J., Jolley, D., Buck, D., Hargreaves, C., & Challis, D. (2018). Reconfiguring inpatient services for adults with mental health problems: Changing the balance of care. BJPsych Open. DOI: 10.1192/bjo.2018.60. Publication link: bc34d544-cfdf-4570-80a8-cb520d737ffe
  • Verbeek, H., Worden, A., Wilberfoce, M., Brand, C., Tucker, S., Abendstern, M., & Challis, D. (2018). Community mental health teams for older people in England: Variations in ways of working. International Journal of Geriatric Psychiatry, 33 (3), 475-481. DOI: 10.1002/gps.4775. Publication link: ff902609-8157-44f3-b93b-0c4e27ba3617.
  • Wilberforce, M., Batten, E., Challis, D., Davies, L., Kelly, M., & Roberts, C. (2018). The patient experience in community mental health services for older people: A concept mapping approach to support the development of a new quality measure. BMC Health Services Research, 18 (1), 461. DOI: 10.1186/s12913-018-3231-6. Publication link: febabf11-9091-414a-b659-f7a8711c3b66.
  • Wilberforce, M., Challis, D., Davies, L., Kelly, M., & Roberts, C. (2018). The preliminary measurement properties of the person-centred community care inventory (PERCCI). Quality of Life Research, 1-12. DOI: 10.1007/s11136-018-1917-1. Publication link : 087f0139-d9bb-4cdb-8bfd-9fbf062a7762.
  • Wilberforce, M., Poll, S., Langham, H., Worden, A., & Challis, D. (2018). Measuring the patient experience in community mental health services for older people: A study of the Net Promoter Score using the Friends and Family Test in England. International Journal of Geriatric Psychiatry. DOI: 10.1002/gps.4978. Publication link: b3f8887d-4393-40f4-92bf-970dccf0ce91.

2017 Articles

  • Abendstern, M., Hughes, J., Jasper, R., Sutcliffe, C., & Challis, D. (2017). Care co-ordination for older people in the third sector: scoping the evidence. Health and Social Care in the Community. DOI: 10.1111/hsc.12420. Publication link: 4eb47f2b-fefe-4491-8b28-960e5bacc70a
  • Abendstern, M., Hughes, J., Jasper, R., Sutcliffe, C., & Challis, D. (2017). Identifying standards for care coordination in adult social care: a multinational perspective. International Journal of Care coordination, 19(3-4), 84-101. DOI: 10.1177/2053434516677663. Publication link: f0dd96fe-ef6c-4071-a9d7-8437aec46f8f
  • Abendstern, M., Tucker, S., Wilberforce, M., Jasper, R., & Challis, D. (2017). Occupational therapists in Community Mental Health Teams for older people in England: findings from a five year research programme. British Journal of Occupational Therapy, 80(1) 20-29. DOI: 10.1177/0308022616657840 . Publication link: 8d4018ea-d143-4469-a221-e7c5ab26b4b2
  • Bremer, P., Challis, D., Rahm-Hallberg, I., Leino-Kilpi, H., Saks, K., Vellas, B., Zwakhelen, S., & Sauerland, D. (2017). Informal and formal care: substitutes or complements in care for people with dementia? Empirical evidence for 8 European countries. Health Policy, 121(6), 613-622.  DOI: 10.1016/j.healthpol.2017.03.013. Publication link: 67a095ab-232d-4c5c-9d78-3675d410fc27
  • Chester, H., Clarkson, P., Davies, L., Sutcliffe, C., Roe, B., Hughes, J., & Challis, D. (2017). A Discrete Choice Experiment to Explore Carer Preferences. Quality in Ageing and Older Adults, 18(1), 33-43. DOI: 10.1108/QAOA-10-2015-0047. Publication link: 86163b3b-88cf-4914-a7da-e03dff278e2d
  • Chester, H., Clarkson, P., Hughes, J., Russell, I., Beresford, J., Davies, L., ... Challis, D. (2017). Evaluating the effectiveness of different approaches to home support for people in later stage dementia: a protocol for an observational study. International Psychogeriatrics, 29 (7), 1213-1221. DOI: 10.1017/S1041610217000291. Publication link: 751aa52c-183d-4529-b81d-7c98fa4b0197
  • Clarkson, P., Davies, L., Jasper, R., Loynes, N., & Challis, D. (2017). A Systematic Review of the Economic evidence for Home Support Interventions in Dementia. Value in Health, 20 (8), 1198-1209.  DOI: 10.1016/j.jval.2017.04.004  Publication link: 29723ff0-a9da-4c13-be44-8969435e2991
  • Clarkson, P., Davies, L., Xie, C., Larbey, M., Roe, B., Giebel, C., Jolley. D., & Challis, D. (2017). Overview of systematic reviews: Effective home support in dementia care, components and impacts- Stage 1, psychosocial interventions for dementia. Journal of Advanced Nursing, 73 (12), 2845-2863. DOI: 10.1111/jan.13362 . Publication link: 0dea089e-ddaa-46e2-afc3-23f5ce0f3
  • Clarkson, P., Hughes, J., Roe, B., Giebel, C., Jolleyl, D., Poland, F., Abendstern, M., Chester, H., & Challis, D. (2017). Systematic Review: Effective home support in dementia care, components and impacts- Stage 2, effectiveness of home support interventions. Journal of Advanced Nursing. DOI: 10.1111/jan.13460. Publication link:330bf70d-5ae1-4fbf-93b4-343322107130
  • Giebel, C., Roe, B., Hodgson, A., Britt, D., & Clarkson, P. (2017). Effective public involvement in the HoST-D Programme for dementia home care support: from proposal and design to methods of data collection (innovative practice). Dementia. DOI: 10.1177/1471301216687698. Publication link: b57b22ad-ca9f-4327-bdb1-0bb44ccb1173
  • Giebel, C., & Sutcliffe, C. (2017). Initiating activities of daily living contributes to well-being in people with dementia and their carers. International Journal of Geriatric Psychiatry 33 (1), e94-e102. DOI: 10.1002/gps.4728. Publication link: 073b1219-a3cc-4b94-98ea-1557a719d9fd
  • Giebel, C., Sutcliffe, C., & Challis, D. (2017). Hierarchical decline of the initiative and performance of complex activities of daily living in dementia. Journal of Geriatric Psychiatry and Neurology 30(2), 96-103. DOI: 10.1177/0891988716686835. Publication link: 125479d5-105c-4ce5-a29b-65eaab28d8ae
  • Giebel, C., Worden, A., Challis, D., Jolley, D., Bhui, K.S., Lambat, A., Kampanellou, E., & Purandare, N. (2017). Age, Memory Loss and Perceptions of Dementia in South Asian Ethnic Minorities. Aging and Mental health, 1-10. DOI: 10.1080/13607863.2017.1408772. Publication link:265f958a-dabc-44fa-87eb-c15bca5395a9
  • Kampanellou, E., Chester, H., Davies, L., Giebel, C., Hughes, J., Challis, D., Clarkson, P., & Members of the HOST-D (Home Support in Dementia) Programme Management Group. (2017). Carer Preferences for home support services in later stage dementia. Aging and Mental health, 1-9. DOI: 10.1080/13607863.2017.1394441. Publication Link: a6fd13a7-6de5-4eea-ba58-694fcd6c2a0a
  • Orrell, M., Hoe, J., Charlesworth, G., I, R., Challis, D., Moniz-Cook, E., ... Streater, A. (2017). Support at Home: Interventions to Enhance Life in Dementia (SHIELD) evidence, development and evaluation of complex interventions. Programme Grants Appl Res, 5(5). DOI: 10.3310/pgfar05050. Publication link: 80350685-73ee-46ee-8d88-ebc557d6ca36
  • Stewart, K., Hargreaves, C., Jasper, R., Challis, D., Tucker, S., & Wilberforce, M. (2017). Provision and perceived quality of mental health services for older care home residents in England: A national survey.  International Journal of Geriatric Psychiatry. DOI: 10.1002/gps.4753.  Publication link: 2b80dd31-c090-4bfd-acc3-7c81b87400e6
  • Tucker, S., Hargreaves C., Roberts, A., Anderson, I., Shaw, J., Challis, D. (2017). Social care in prison: Emerging practice arrangements consequent upon the introduction of the Care Act 2014. British Journal of Social Work. DOI: 10.1093/bjsw/bcx115 . Publication link: 463a50a7-5038-4140-9b6c-68a8d1b61993
  • Webster, L., Groskreutz, D., Grinbergs-Saull, A., Howard, R., O'Brien, JT., ...Challis, D., .....& Livingston, G. (2017). Development of a core outcome set for disease modification trials in mild to moderate dementia: a systematic review, patient and public consultation and consensus recommendations. Health Technology Assessment, vol 21, no.26. DOI: 10.3310/hta21260. Publication link: 4300be00-f064-4eb7-a1fe-2a5b4753b3fd
  • Webster, L., Groskreutz, D., Grinbergs-Saull, A., Howard, R., O'Brien, JT., ...Challis, D., .....& Livingston, G. (2017). Core Outcome Measures for interventions to prevent or slow the progress of dementia for people living with mild to moderate dementia: systematic review and consensus recommendations. PLoS ONE, 12 (6), e0179521. DOI: 10.1371/journal.pone.0179521. Publication link: 54618fc1-8288-4fac-b806-b5ddb99a0b50
  • Wilberforce, M., Abendstern, M., Tucker, S., Ahmed, S., Jasper, R., & Challis, D. (2017). Support workers in community mental health teams for older people: roles, boundaries, supervision and training. Journal of Advanced Nursing, 73 (7) 1657-1666. DOI: 10.1111/jan.13264. Publication link: 9a4e674c-252a-47bd-a97d-afd922b1e223
  • Wilberforce, M., Hughes, J., Clarkson, P., Whyte, D., Chester, H., Davies, S., & Challis, D. (2017). An electronic referral system supporting integrated hospital discharge. Journal of Integrated Care, 25(2), 99-109. DOI: 10.1108/JICA-09-2016-0034. Publication link: 835850c1-3158-4ca4-b1c5-98f4b7878365